Tuesday, November 25, 2008

Update...

So I guess it is time for a happier update - Evan has appointments in December and January. Which is much sooner that I had expected - hooray for cancellations!! He has been talking more (pretty much because he is a smart boy and has figured out I am going to be taking him to the doctor if he doesn’t start talking more). I have got the tentative ok to change my schedule up a bit to accommodate therapy and doctor appointments. I am still with the plan that come tax time, Jer is going to be the money making machine and I will be able to really focus on just Evan. My Scentsy business is going very well (check it out www.scentsy.com/12204) . I have really enjoyed meeting people beyond my family and friends. I have a few parties lined up for December and first quarter, so I am happy with it. Evan loves preschool with Miss 'Anina' and I believe auntie cassie is very entertained between the two little nuggets. Jer has promised to take me far away to Disneyland next year (yeah!!!!) and I think Evan will love it! Well that is all I know… I'll let you know if something else pops up.

Sunday, November 16, 2008

My Bambino and Life

So I have never felt so incredibly useless as I did Friday. I took Evan to a speech therapy consultation and the hold up this book and ask about a billion questions like "show me the doll, which one is blue, where are the shoes, which block is on the box". Well what we found out is that he is speaking/comprehending on a two year to two and a half year level. I was seriously bawling in the office- I was perfectly aware my child was behind, just not that far. I was very ready to be told that there were a billion options to help him and that I needed to call so many places and coordinate care and that everything would be ok. Well nope - not quite. See my insurance will cover the diagnostic test to see if he is at level, but will not cover any therapy for a delayed child. And to top it all off, the Speech Therapist - Kevin- mentions Autism and then focuses on getting Evan screened for it. I about died, not because I am afraid of what we may find out, or even that my child may be labeled for the rest of his life with something that still carries a horrible stigmastism, but rather because I asked Evans doctor about this in MARCH!!!!!! I was told to wait another six months. So I waited, but when I called the MD office in September I was told they would call me back in a week or so with the referral (eventually being speech and audiology testing) - Well the amazing staff called the wrong number, and didn't bother to look into the phone numbers at all and quit trying to get ahold of me. So it was another two weeks when I called back and they attempted to give me the third degree about keeping my number updated when I need to have a call returned. As you may guess that did not go over so well with me. Now I called the Doctor to get a referral to get an Autism check and they would like to wait for the written reports to come in and they will get back to me sometime next week. So I hang up - bawling again and decide I should call my insurance to see if there is a separate deductible for this kind of therapy (because kids you should always check with your INSURANCE!!!!) Glad I did - they dont cover it unless there is an accident or illness that took his speech away. I asked if they would cover it if we had an autism diagnosis and get this - THEY DONT COVER AUTISM --- The reason for this you ask???? BECAUSE THERE IS NO CURE!!!!!!!!! WTF WTF WTF WTF WTF AND WTF - (for those of you who dont know, that stands for Where is The Fax and I am still very angry) Really now, AIDS shouldnt be covered, My Bipolar Disorder shouldnt be covered - or really any mental illness, some Cancer shouldnt be covered - and your insurance really doesnt give a damn about you or anyone else.

So now we wait (and cry) some more...

Tuesday, November 11, 2008

My Bambino

You know - I dont care that my baby is not the most verbal thing in the whole world. He is the sweetest little thing always wondering where his momma is and if i have a 'd-ache'. Jer has promised me that regardless of our financial situation, after tax time, I can stay home with the bambino!!!!!! Which I decided we will learn how to read - Mary has offered to teach him how to watch Days of Our Lives (tried to talk her into horse back riding, but it was a no go) - I am going to let grandma Betty teach him how to cook and then he will be a well rounded child. Now I need to remember to get little chairs for his little bottom...

Wednesday, November 5, 2008

Audiology

So I wanted to make an appointment with a speech therapist as my bear is not as verbal as we would like him to be. Well of course they want to rule out things like Deafness before they try to get my child to mimic their language... so off we go to the Audiologist. Well my rock star child hears just fine! It really is amazing what modern medicine practices can do. First they put probes in his ears to make sure his drums are reacting the way they should to different volumes and pitches, then came the fun part. They put us (E bear in my lap) in a tiny sound booth and put headphones on him. Then they would talk to him thru one side and flip on a monitor when he looked to the right or the left. Well one time the left monitor kicked on and there were dancing hippos - Evan thought that was hysterical. So they turned off the monitor and tried to get him to look right - He did turn, but only to say "no! hippos please" and turn back to the left to wait patiently.